National Organization for Rare Disorders

For The Record with Erica Barnes, Executive Director, Chloe’s Fight Rare Disease Foundation

Erica began her professional career as a speech-language pathologist in the healthcare setting. Following the death of her daughter, Chloe, in 2010 she co-founded Chloe’s Fight Rare Disease Foundation with her husband Philip. Through her advocacy work she has represented the National Organization for Rare Disorders (NORD) as a Minnesota state ambassador, has provided public […]

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