Erica Barnes

For The Record with Erica Barnes, Executive Director, Chloe’s Fight Rare Disease Foundation

Erica began her professional career as a speech-language pathologist in the healthcare setting. Following the death of her daughter, Chloe, in 2010 she co-founded Chloe’s Fight Rare Disease Foundation with her husband Philip. Through her advocacy work she has represented the National Organization for Rare Disorders (NORD) as a Minnesota state ambassador, has provided public […]

Women in Health Leadership featuring Seanne Falconer of The University of Minnesota Photo Gallery

Thank You To Our Sponsors Join Us At Our Next Women in Health Leadership Event Featuring Erica Barnes, Chloe’s Fight Rare Disease Foundation January 30, 2020

Rare Disease Advisory Council One of Few Standalone Bills Passed by Minnesota Legislature

Minneapolis, MN – On Monday, May 20, 2019, hours before the Minnesota Legislature adjourned the first part of its 91st legislative session, the House and Senate voted unanimously to pass SF 973, establishing the Chloe Barnes Advisory Council on Rare Diseases. The council is named in honor of two-year-old Chloe Barnes who passed away from […]

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